Events | Research Alerts | Resources | Pulmonary Rehabilitation
Upcoming Events: August – December, 2010
- Starting in September - Be Part of a New Telephone Support Group! It’s for anyone living with a chronic illness who wants to enrich or improve his or her life in some way. We’re looking for people who, in addition to managing their chronic illness, want something more. Specifically, people who want to lead a more full life despite their illness. People who have a goal. The goal doesn’t have to be earthshaking - it may be to take a long walk or play a sport, to volunteer for a non-profit, or enroll in a class. While the group will not focus on medical issues, through group conversations and support, we will help people manage their illness better. The group will be limited to 8 people and will meet by telephone every other Tuesday beginning September 14th from 5:00-6:00pm. If you, or someone you know, might be interested in the program, please call Ashley Mevi at (650) 994-1903 ext 313 or Alan Becker at (415) 922-4584.
- October and November - Better Breather’s Self-Management Education Series for COPD Patients and Their Caregivers. Breathe California and Healthy San Francisco Asthma/COPD Program are proud to offer a 4-session patient education and self-management support program for COPD patients and their caregivers at San Francisco General Hospital. RSVP to (650) 994-1903 ext 313 or .
- November - COPD presentation at CPMC in San Francisco. Titled “COPD: Advances in Treatments & Symptom Management,”Dr. Steven Hays, Medical Director of the Center for Advanced Lung Therapies at California Pacific, and Chris Garvey, FNP, MSN, MPA, an expert pulmonary rehabilitation therapist, will offer a lecture focused on symptom management for those struggling with COPD, a major cause of disability and the fourth leading cause of death in the US. The most up-to-date treatment options will be presented. Sponsored by CPMC’s COPD clinic and Breathe California. Wednesday, November 17, 2010 from 6:00 – 7:30 p.m. To register, call (415) 923-3155 or email at
- December - Better Breather’s Support Group for COPD Patients. Breathe California and Healthy San Francisco Asthma/COPD Program will begin hosting a support group for COPD patients at San Francisco General Hospital on Saturday, December 4th from 10:30-12noon. For more information call (650) 994-1903 ext 313 or email .
COPD Research Study Alerts
- Self-Management for Shortness of Breath, Using the Internet at UCSF - To learn more, visit www.managesob.org. Call Dor-Anne at (415) 476-5375 for more information.
- Seton Hospital’s Pulmonary & Cardiac Rehabilitation Department is recruiting individuals with lung disease who use oxygen for a research study. Participants will be paid for their time and transportation costs. Call Chris Garvey at (650) 991-6776 for more information.
- The STATCOPE Study at UCSF - The National Heart Lung and Blood Institute (NHLBI) COPD Research Network and a nationwide network of clinical sites are conducting a trial to find out if a statin – which is currently used to help patients reduce cholesterol and prevent health disease – can help reduce flare-ups in patients with COPD. To learn more about enrolling in this study, email UCSF at , or call (415) 476-3259 or (866) 246-4253.
- The Spiromics Study at UCSF Sponsored by the National Heart Lung and Blood Institute (NHLBI), researchers at UCSF are conducting an observational research study to assess COPD treatment effects in COPD patients. To learn more, please call (415) 269-6370.
COPD Resources for Patients, their Families and Care Givers
- Healthline COPD Learning Center
- Living with COPD
- The Help You Need to Quit Smoking
- My Symptoms Journal
- Understanding How Your Lungs Work
- Spirometry and COPD
- COPD Foundation strives to develop and support programs which improve the quality of life through research, education, early diagnosis, and enhanced therapy for persons whose lives are impacted by Chronic Obstructive Pulmonary Disease.
- The COPD Call Center is staffed by COPD patients and provides guidance and referral information to the millions of COPDers - not only those on the internet but also those who have no internet connection. The toll free phone number to reach the COPD Information Line is (866) 316-COPD (2673).
- COPD Digest is published with the support of, and contributions from, organizations representing the entire COPD community.
- Learn More Breathe Better, developed by the National Heart, Lung, and Blood Institute (NHLBI), helps people with COPD and those at risk to become more aware of COPD, get diagnosed early, better understand this disease and live better with it.
- EFFORTS, or EMPHYSEMA FOUNDATION FOR OUR RIGHT TO SURVIVE, provides information and support for individuals with emphysema or other lung disease. EFFORTS was formed and is operated by patients with the emphysema.
- The Alpha-1 Association is a member-based not-for-profit organization dedicated to identifying those affected by Alpha-1 Antitrypsin Deficiency (Alpha-1) and to improve the quality of their lives through support, education, advocacy and to encourage participation in research.
- Everything Respiratory is a print and online respiratory magazine by consumers for consumers. Educates readers with relevant and timely articles, as well as presents current product information and real life stories of readers in similar situations.
- The Global Initiative for Chronic Obstructive Lung Disease works to raise awareness of Chronic Obstructive Pulmonary Disease (COPD) around the world and to improve prevention and treatment of this lung disease. Patient resources include a short interactive questionnaire, as well as a Patient Guide to help answer questions and provide information.
COPD Resources for Health Care Providers and Health Care Professionals
- Antibiotics for Acute Exacerbations
- Inpatient Management of Acute Exacerbations
- Differential Diagnosis of COPD
- Spirometry Standard for Dx of COPD
- GOLD Pocket 2011
- Use of Medications in Stable COPD
- The Global Initiative for Chronic Obstructive Lung Disease (GOLD) works with health care professionals and public health officials to raise awareness of Chronic Obstructive Pulmonary Disease (COPD) and to improve prevention and treatment of this lung disease for patients around the world.
- The American Association of Cardiovascular and Pulmonary Rehabilitation (AACVPR) is dedicated to reducing morbidity, mortality and disability from cardiovascular and pulmonary disease through education, prevention, rehabilitation, research and disease management. AACVPR is a multidisciplinary professional association comprised of health professionals who serve in the field of cardiac and pulmonary rehabilitation.
- NHLBI’s Learn More Breathe Better is resource for health care professionals.
- American Thoracic Society (ATS) is dedicated to advancing clinical and scientific understanding of pulmonary diseases, critical illnesses and sleep-related breathing disorders. On an ongoing bases, ATS provides its Coding & Billing Quarterly Newsletter relevant to clinicians in respiratory, critical care and sleep medicine.
- The California Society for Pulmonary Rehabilitation (CSPR) is a nonprofit organization dedicated to providing professional education and communication for the advancement of pulmonary health and rehabilitation. The CSPR also welcomes Out-of-State members.
170 Alameda de las Pulgas, 2nd Floor
Redwood City, CA 94062
- Pulmonary Rehabilitation Program - An 8-week education/exercise program for patients with chronic lung disease
- Better Breather’s Club Monthly Meetings - Time: 11:00 a.m., Location: Veterans Memorial, Senior Center, 1455 Madison Avenue, Redwood City, CA, Sunset Room, Main Building
- The Breeze: A Newsletter About Breathing
- Adult Asthma Education - A 2-hour group education class
1900 Sullivan Avenue
Daly City, CA 94015
- Pulmonary Rehabilitation - Time: Ongoing Tuesdays and Thursdays, Topic: Education and Exercise to Improve Breathing Function
- Better Breather’s Club - Education program and support group for persons with lung disease
- Lungevity: A Newsletter of the Seton Pulmonary Rehabilitation Program and Better Breather’s Club
100 S. San Mateo Drive
San Mateo, CA 94401
- Pulmonary Rehabilitation
900 Hyde Street, Lower Level
San Francisco, CA
- Individualized Pulmonary Rehabilitation Program
- Better Breathers Program - Free to public
- COPD Rehabilitation Classes
North Campus, Building I, Suite 3
2720 Grant Street
Concord, CA 94520
- Pulmonary Rehabilitation – six week program which includes training, support and tools to best meet the day-to-day challenges of living with lung disease
- Ongoing maintenance exercise program and the monthly educational/support group
- Better Breather’s Club
3800 Janes Road
Arcata, CA 95521
(707) 822-7220 ext. 4143
- Pulmonary Rehabilitation
- Better Breather’s Monthly Meetings (Arcata-McKinleyville) - Call (707) 834-4289 for more information.
- Better Breathers Clubs (Eureka and Fortuna) - Call Val Vogel at (707) 444-8022 for more information.
For more information about these programs or programs in other counties, call Breathe California at (650) 994-5868
More lung health resources:
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Page last modified on Monday, February 04, 2013 10:53:52pm UTC